Sometimes life throws you a curve ball and sometimes that curve ball is a blessing.
Three years ago my 17 month old granddaughter came to live with me following my daughter, her mom’s, untimely death.
The baby was not sitting up by herself, seemed to ‘zone out’, was certainly not crawling or walking, and had only sounds that equated Momma and Dadda. She could not finger feed herself and was in constant movement, wiggliest little bundle of baby I have ever known. Within two days of mom’s death I had engaged the ‘early intervention’ folks following the recommendation of the pediatric developmental physician that my daughter and I had met with earlier in the week. We were dealing with global delays. Eventually, her nuerologist told me she had significant microcephaly. And how that presented for her as she continued to grow is that she has a significant proprioceptive dysfunction condition (why she was in a constant state of movement and would always be pushing you away) that made her become a little girl covered from head to toe in bruises.
Needless to say, it was a time of great learning while balancing the emotions of my daughter’s loss. But we do what is right and the baby needed a secure environment in which she could learn and hopefully thrive.
WHERE Was I
At the time of my daughter’s death I was running a health and safety training and consultation business. I had worked 7 years for a pollution control agency, 10 years with OSHA, and 7 years with a legacy airline managing occupational safety and health. My business was to support businesses by creating programs, performing inspections, and identifying risks for accidents and injuries in their work environments. I am quite comfortable with the regulatory world. I had a few clients that were keeping me comfortably busy. But with three children to care for, the baby, and her older sister and brother, and valid concerns for their safety … my business dried up and died. My focus since then has been their welfare!
HOW Did My Kiddo Do
This beautiful little bundle started with in-home physical therapy. It was like she was the Energizer Bunny x10, so much movement. For months we worked to encourage her to crawl, but once she was able to sit up all she wanted to do was bottom scoot. And scoot she did. With lots of support from the physical therapist she started to walk at 28 months, 11 months after engaging therapy. Speech therapy and then occupational therapy followed. Learn, oh yes quite a learning curve became a part of our busy lives especially because it is apparent she has a sensory processing disorder (SPD). It has been a continual learning curve since then…
Now? Well, now we are preparing for kindergarten. YIPES! My learning curve has started to include advocating for what she is going to really need to ensure as smooth a sail as possible in her personal world. And I am finding that there are going to be times I will need to powerfully advocate in her behalf. Of course, I am comfortable in a regulatory setting and knowing the laws will be critical to effectively advocate. This will be a journey and thankfully there is a lot of information to help.
Identifying what may be needed and what the law requires and what our rights are has been a learning curve that I hope to make easier for others. Determining what services, supports, and resources will be helpful (like books, equipment, toys and games) can be a time consuming search. Hopefully my learning curve will shorten yours!
And that is WHY this site exists!
Join me as we work hard to ensure what our very special children need.
• They need to be safe.
• They need to be fully realized as the precious human beings they are.
• They need passionate, educated, and courageous advocates who will ensure their future is the best it can be!
THAT WOULD BE YOU AND I
ADVOCATING POWERFULLY FOR OUR KIDDOS!!!
Please drop me a line in the comments section below or email me: firstname.lastname@example.org
I’m looking forward to supporting you in your journey.
December 27, 2014
As a Post Script to what I have been doing with Special Needs Advocate Power, I’d like to briefly share with you how I was able to start this blog. I knew that I wanted to be home for my daughter AND her older sister and brother. I was 58 when my the first of my five passed away and having the responsibility for a family again, well I just couldn’t see me working a full-time job and caring well for their mental and emotional well-being, let alone caring well for mine.
I was looking online for stay-at-home jobs when I came across a website as a referral. I started to feel that something wasn’t right so I Googled it and came up with allot of information that confirmed my gut. I was being scammed and it didn’t feel good when my budget was so hard to manage and prevent it from getting turned inside out. While doing that digging around in the internet I came across a website that introduced me to an online educational opportunity, an education in creating a viable online business based in affiliate marketing. I did not know anything at all about that subject, but I was intrigued.
Everything I read about this company convinced me I should give them a try. I couldn’t loose with a ‘Free Trial’. Well, this website is the product of my investment in the education I am receiving at Wealthy Affiliate University. I have so much more to learn! In time I will learn how to not only benefit my granddaughter and I, but others too, because we all need information when it comes to accessing resources, developing and maintaining a strong family, and when making our well-thought out purchases.
If you’d like to explore what I am talking about, use this link http://www.wealthyaffiliate.com?a_aid=b6bdcbe1. Visit their website, you may be intrigued and go to check them out. I have been SO very happy with the lessons they provide and the community that functions from the philosophy of “pay it forward”. It really is remarkable. In time as I learn to fill the needs of my audience, I will also be caring for my family’s needs because I’m going to find great companies to recommend who have affiliate programs from which we will benefit. You can too!